Saturday, October 29, 2011

My Hiatul Come Back

I like the phrase "hiatul come back". To my ears, it has a sort of ring. So I used it despite the little red squiggle line under hiatul... I'm a rebel like that ;) So please know that I know it's a Kristy-ism.

Ok... down to the nitty-gritty... This thing called LIFE~
Since I am not only using my blog as a crafty-fun blog, but also as a "doing real life" blog I will attempt to make a long story short... but since I am not really known for being a woman of few words, I highly doubt it's possible ;)
This is what life has been like for us for the past 6 weeks.. And just to set the ground work... GOD IS GOOD PEOPLE!! HE IS SO GOOD!

My 18 yr old daughter has been diagnosed with Lupus. Autoimmune diseases run in my family (I actually have hypothyroidism secondary to Grave's disease/Hyperthyroidism after having my thyroid eradicated in 2000). Tho the weight of the diagnosis for her was so heavy and so scary and so heart-breaking, let me tell you how good God is..
A year ago we had Jordan tested for anemia because she began bruising super easy.. to the point of "where in the world did this come from" easy. Tests were negative.. blood looked fine. Fast forward a year... She was put on antibiotics in August. Three days after taking her first dose she began aching, her joints began to painfully swell and she was unable to walk comfortably due to the pain in her feet. I took her to the dr and had blood tests run. Tests showed a positive reading for ANA (Lupus). Her dr. said it is most likely a drug reaction and discontinue the antibiotics. However, the blood tests also showed she had a very low platelet count and that concerned him. A normal count is 142,000 to roughly 400,000. Hers were 19,000. Dr. put her on a low dose of Predisone to elevate her platelet count. After a day or two of being on the Predisone, all symptoms subsided. Life was back to being good :) We went back to the dr. a week later for another blood test. Platelets were up to 124,000. Good news, right!? Well, the following week when we had to return for another blood test, her platelet count was at 14,000. Umm..Not so good news! She was dangerously at risk of hemorrhaging bc your platelets are what clots your blood. Hers are not high enough to clot. We saw a Hematologist immediately which led to more blood tests (and a high dose RX of Prednisone).... which led us to a Rheumatologist... which led to more blood tests... which led to the confirmation of Lupus. The type of Lupus she has THANKFULLY has NOT settled in her joints. What she experience previously, was indeed a reaction to the meds. It is however attacking her white blood cells/Platelets. This is where the Lupus has settled. She is negative for Rheumatoid arthritis, but positive for Sjogren's (autoimmune disease that produces dry eyes and mouth). She is symptom free of the Sjogren's, thankfully! At her last blood test, her platelets were up to 199,000!!!! ONE HUNDRED NINETY NINE THOUSAND!! THIS IS FANTASTIC news! Her body is responding to the steroids so she is now on the Lupus medication to PRAYERFULLY get her into a remissive state! She has horrible body aches from time to time, which has been explained to us a Pleurisy (an inflammation of the lining in the lungs). Apparently, the two sort of go hand in hand. Massage helps if we do it at early onset. Needless to say... this has been an incredibly emotional journey for us! I know things can ALWAYS be worse... I know this. But this is my baby girl.. my child. It pains me greatly to see my children hurt and to know her life will be altered just deflated me. After MANY MANY prayers, God spoke to my heart. He showed me the silver lining. He showed me that my prayers WERE, in fact, answered! This is what He showed me....
*Had Jordan not had the reaction to the antibiotics, we never would have seen her low platelet level
*Had we not seen the low platelet level, the Lupus would most definitely have settled into another area of her body (her joints)
*Had we not had to rely on the strength that can only come from God, our relationship with Him would not have had the opportunity to grow as it has
*We prayed for healing if it was God's will... but if her body was to have Lupus, we prayed for the BEST cast scenario... and PRAYERS WERE ANSWERED!

I would have to say that not only is our silver lining there... but it SHINES! Thank you Jesus for mercy!

So.. with all of that said... we are in a better place, moving forward with her new "normal" and all is as it is meant to be. And for that, I am thankful.

Sunday, October 16, 2011

A Link Up :)

Hi friends!
Well, there has been QUITE alot going on around our house the past few weeks and I am planning a big ol' share day soon. Until then...

I have linked up to Eighteen25 Halloween spectacular! (THANK YOU LADIES!) Have you seen their blog?? AHHHmaazing!! You should really check them out! Go on... click the button... It's on the right side of the page... see it??.. it's ok... I'll see ya soon.. :)

Monday, October 3, 2011

No words... ; )

This is Big Daddy....

This is my prized Halloween possession...

See the resemblance!?!
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Sunday, October 2, 2011

OoKy SpOoKy

I LOVE to decorate for Halloween! Love it, love it, love it!! WHY?? Because I love folky vintagey kinda stuff and Halloween decor HAS it! I usually pick one or two things up a season to add to my collection. It's so much fun. I typically find my goods at TJ Maxx or HomeGoods~~ BEST stores evaaa!!!
But this year, I decided to do something a tad different in my formal dining room. I am not limited to my love of all things vintage... oh no... I really love blingy, flashy, fun, funky too!

SO.. bet you're wondering what I got, huh?!

First, lemme ask ya a question...

What would YOU create with a wreath, a silk rose, a blingy skull, paper candelabras, a couple of birds, spiders and sparkly feathers from Michael's??


What if I fluff up the wreath.... add these here....

(these feathers were actually with the CHRISTMAS decorations! Yes, Christmas and Halloween are out in the same season. You know, cuz it makes perfect sense!) {Not that I'm complaining.. because without it, I wouldn't have these fun little feathers. Happy I was able to cringe and smile all at the same time *wink, wink*

OK... and so maybe that there.....

And put these guys here and here....

Oooo... I think I might likey.....

I DOOO likey!! And the very best part?? NO GLUE GUN REQUIRED! Not that I don't thoroughly enjoy using the glue gun, but if I can whip up a table wreath in 2.5 seconds... I'll take it! I haven't found "THE" perfect table cloth as of yet. Thinking I may just go get some sparkly purple fabric and then cover it with black netting to give it dimension and a touch of glam... What do you think?! I also currently do not have any curtains in there so I am thinking maybe something in a gauzey material?? I don't know yet.. gotta put on the ol' creative thinking cap~

Suggestions are ALWAYS welcome! See that little comment section down there? That's where you can leave me your thoughts ;)

Like I said, I don't normally decorate with this "style" ( my mom said it reminds her of Guns and Roses! HA!! I didn't even know my mom knew who Guns and Roses WAS!! lol!!)

This is more my Halloween decor...

See what I mean... So totally different. And I'm just fine with that~

I really like my fun blingy table wreath and paper candelabras! They are different and fun and little funky... just like me :)

Here's one more peak...

Happy decorating!!